Are you frustrated carrying around heavy files with all your child’s medical history?
Do you wish there was an easy, seamless way to share this data with emergency doctors, teachers and childminders? Have you ever worried about travelling with your child and having to communicate their disease in different languages?
My Duchenne is the new groundbreaking app built for the Duchenne community by the Duchenne community. The app makes it easy for you to access, own and control health information that belongs to you.
My Duchenne is the new groundbreaking app built for the Duchenne community by the Duchenne community
My Duchenne is a tailored version of the Backpack Health app, making it easier for Duchenne patients and their families to create, own and control health data in a way that makes sense for them. Users are invited to join the international Duchenne e-community and reach the data they need in a way that is meaningful for their lives. Medical professionals and researchers alike can engage patients and access up-to-date data that is critical for improving treatment.
An accessible app that allows users to easily store and reach their medical information at any time, anywhere.
An organised way to allow users to track medical information over time in a meaningful way.
An easy approach allowing the sharing of medical information with health aides.
It’s simple and easy to get involved.
How do I get the free app?
You can download it from the App Store or Google Play and start entering all the data that is relevant to you immediately.
How do I join My Duchenne?
My Duchenne is a group for the duchenne community nestled within Backpack health. You can simply search for the group "My Duchenne" in the app using the plus (+) icon, or you sign up via the link below.