Who we are.
My Duchenne is for Duchenne patients and caregivers to have all their health information at their fingertips. Self-managing extensive data can be difficult and at times overwhelming. My Duchenne works to take these stresses away so families can focus on the more important things.
“I can not believe how much information I keep in my head and in heavy folders and on post it notes, I'm surprised my brain hasn’t exploded, i’ve needed this tool for so long!”
A Duchenne Parent
Accessibility: An accessible app that allows users to easily store and reach their medical information at any time, anywhere.
Organisation: An organised way to allow users to track medical information over time in a meaningful way
Shareability: An easy approach allowing the sharing of medical information with health aides.
Years in the making
It’s been a journey to download and input what we all hold in our heads into a powerful and intuitive user experience
Countries using backpack Health
Over 60 countries across the globe are already represented by users of the Backpack Health app
years of Duchenne experience
A team with a combined total of 80+ years of Duchenne experience brought together to deliver one powerful tool.
It’s simple and easy to get involved. Download from the App Store or Google Play and start entering all your or your Childs data. From supplements and medications, blood test results to North Star Ambulatory Assessments. Anything and everything is available to you and circle of caregivers. And if it’s not just get in touch. We’ll add it in.
MyDuchenne Backpack starts with you.